- The Children’s Heart Center at Phoenix Children’s Hospital is the regional leader in the treatment of congenital heart disease. Expertly trained professionals working as a team provide the very best care for children and their families.
- St. Joe’s Children’s Health Center is a comprehensive health center offering the expertise of numerous specialty programs to our patients. CHC provides research and technology with care and support for children and their families.
- Arizona Pediatric Cardiology Consultants, an affiliate of Obstetrix Medical Group of Phoenix, is dedicated to providing a center of excellence for the diagnosis and treatment of congenital heart disease in children and adults, as well as, acquired heart disease in children.
- Ronald McDonald House Charities of Phoenix is a temporary home-away-from-home where the families of children being treated for serious illnesses or trauma reside while the child receives treatment at a nearby hospital or medical center.
- The University of Arizona Pediatric Cardiology. The Section of Pediatric Cardiology is part of the Department of Pediatrics at the University of Arizona. For more than 30 years, we have provided complete and comprehensive care for infants, children and young adults with congenital and acquired heart diseases.
- The Emily Learning Center at Phoenix Children’s Hospital. The Emily Center is the most comprehensive pediatric health library in the Southwest, providing hundreds of patients and families materials are about child health, injury and illness.
- Mended Little Hearts is a nonprofit, educational, volunteer service organization committed to offering support to the families of children with congenital heart defects in the greater Phoenix area.
- Congenital Heart Information Network is an international organization that provides reliable information, support services and resources to families of children with congenital heart defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them.
- HeartLight Support Group was developed and is administered by families and individuals living with congenital heart defects. Its goal is to support these patients and their families emotionally, spiritually, and financially, when possible.
- The Anthony Bates Foundation is a 501 (c) (3) non-profit organization dedicated to save young lives through early detection of Hypertrophic Cardiomyopathy. The Anthony Bates Foundation is actively promoting public outreach programs through training and education of heart screening events. Their goal is to promote heart health education and awareness of HCM.
- Additional Arizona Links: Arizona Community Foundation is a nonprofit, tax-exempt 501(c)(3), which serves as a form of charitable “savings account” where donors accumulate and preserve philanthropic capital and distribute invested earnings to a wide variety of charitable beneficiaries both inside and outside of Arizona.
- National Links: Adult Congenital Heart Association’s mission is to improve the quality of life and extend the lives of congenital heart disease survivors through education, outreach, advocacy and promotion of research.
- American Heart Association offers information such as:
o If Your Child Has a Congenital Heart Defect
o Children & Exercise
o Children & Nutrition
- New York Online Access to Health offers information on congenital heart defects available in both Spanish and English.
- The Heart Center Encyclopedia from Cincinnati Children’s Hospital.
- The Children’s Heart Foundation funds the most promising research to advance the diagnosis, treatment and prevention of congenital heart disease.
- University of Chicago Children’s Hospital has a good selection of patient education material.
- PediHeart Organization Pediatric Heart Surgery Associates (“PediHeart Organization”)
maintains this site (“Site”) as a community service for your personal information, education, and communication.
- Library of Heart Diagrams: Royal Children’s Hospital has a large collection of easy-to-understand diagrams of various heart defects.
- A Glossary of Congenital Heart Disease Terminology: A Dictionary for Patients and their Families
- The Care Notebook and Care Organizer are tools for families who have children with special
health care needs. Families use Care Notebooks to keep track of important information about their child’s health and care.
- Insure Kids Now has information on low-cost health insurance for Arizona (available in English and Spanish) and other states.
- American Academy of Pediatrics: How to Use Your Managed Care Plan Effectively: Questions and Answers for Families With Children
- The Centers for Medicare & Medicaid Services includes information about Medicaid and state insurance programs.
- The National Information Center for Children and Youth with Disabilities. The Arizona offices listed on this state sheet are primarily state-level offices. Even if an office is not close to your home, they can usually put you in touch with resources in your community, as well as provide you with information and assistance about disability issues in your state.
- The Sudden Arrhythmia Death Syndromes (SADS) Foundation is dedicated to providing information, assistance & hope to save the lives of children and young adults who are genetically predisposed or otherwise susceptible to sudden death due to cardiac arrhythmias and to provide education and support to families and the medical community who are dealing with these disorders.
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