The Nick & Kelly Children's Heart Fund works with the following
organizations in Arizona.
The
Children's Heart Center at Phoenix
Children's Hospital is the
regional leader in the treatment of congenital heart disease. Expertly
trained professionals working as a team provide the very best care for
children and their families.
St.
Joe's Children's Health Center is a comprehensive health
center offering the expertise of numerous specialty programs to our
patients. CHC provides research and technology with care and support for
children and their families.
Arizona
Pediatric Cardiology Consultants, an affiliate of
Obstetrix Medical Group of Phoenix, is dedicated to providing a center of
excellence for the diagnosis and treatment of congenital heart disease in
children and adults, as well as, acquired heart disease in children.
Ronald McDonald House
Charities of Phoenix is a temporary home-away-from-home where the
families of children being treated for serious illnesses or trauma reside
while the child receives treatment at a nearby hospital or medical center.
The University
of Arizona Pediatric Cardiology. The Section of Pediatric Cardiology is part of the Department of
Pediatrics at the University of Arizona. For more than 30 years, we
have provided complete and comprehensive care for infants, children and
young adults with congenital and acquired heart diseases.
The
Emily Learning Center at Phoenix Children's Hospital.
The Emily Center is the most comprehensive pediatric health library in the
Southwest, providing hundreds of patients and families materials are about
child health, injury and illness.
Heart2Heart Support Group was started in order to help families going through the
difficult times associated with a child who has congenital heart defects,
by people who have CHD children.
Additional Arizona Links:
Arizona
Community Foundation is a nonprofit, tax-exempt 501(c)(3),
which serves as a form of charitable "savings account" where
donors accumulate and preserve philanthropic capital and distribute
invested earnings to a wide variety of charitable beneficiaries both
inside and outside of Arizona.
Congenital
Heart Information Network is an international organization
that provides reliable information, support services and resources to
families of children with congenital heart defects and acquired heart
disease, adults with congenital heart defects, and the professionals who
work with them.
HeartLight
Support Group was developed and is administered by families and
individuals living with congenital heart defects. Its goal is to support
these patients and their families emotionally, spiritually, and financially,
when possible.
The Anthony
Bates Foundation is a 501 (c) (3) non-profit organization dedicated to
save young lives through early detection of Hypertrophic Cardiomyopathy.
The Anthony Bates Foundation is actively promoting public outreach programs
through training and education of heart screening events. Their goal is to
promote heart health education and awareness of HCM.
National Links:
American
Heart Association offers information such as:
If Your Child Has a
Congenital Heart Defect
Children & Exercise
Children & Nutrition
New
York Online Access to Health offers information on congenital
heart defects available in both Spanish and English.
The
Heart Center Encyclopedia from Cincinnati Children's Hospital.
University
of Chicago Children's Hospital has a good selection of patient
education material.
PediHeart Organization.
Pediatric Heart Surgery Associates ("PediHeart Organization")
maintains this site ("Site") as a community service for your personal
information, education, and communication.
Library
of Heart Diagrams: Royal Children's Hospital has a large collection
of easy-to-understand diagrams of various heart defects.
A Glossary of
Congenital Heart Disease Terminology: A Dictionary for Patients
and their Families
The Care Notebook
and Care Organizer are tools for families who have children with special
health care needs. Families use Care Notebooks to keep track of important
information about their child's health and care.
Insure Kids Now has
information on low-cost health insurance for Arizona
(available in English and Spanish) and other states.
American Academy of
Pediatrics: How to Use Your Managed Care Plan Effectively:
Questions and Answers for Families With Children
The
Centers for Medicare & Medicaid Services includes information about Medicaid
and state insurance programs.
The National Information
Center for Children and Youth with Disabilities. The Arizona offices
listed on this state sheet are primarily state-level offices. Even if an office
is not close to your home, they can usually put you in touch with resources in
your community, as well as provide you with information and assistance about
disability issues in your state.
The Sudden
Arrhythmia Death Syndromes (SADS) Foundation is dedicated to providing
information, assistance & hope to save the lives of children and young
adults who are genetically predisposed or otherwise susceptible to sudden death
due to cardiac arrhythmias and to provide education and support to families and
the medical community who are dealing with these disorders.
